This site is only for patients in the United Kingdom who have been prescribed CAMZYOS®▼ (mavacamten)

This site is only for patients in the United Kingdom who have been prescribed CAMZYOS®▼ (mavacamten)

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Patient support organisations and online resources

Being diagnosed with a long-term heart condition may be scary, confusing, and overwhelming at times for you and your loved ones. It is normal to feel this way, and there is support available.

Your doctor and healthcare team remains your best source of information about your condition and your treatment. In addition, there are patient support organisations and other resources available to help you understand your obstructive HCM diagnosis and offer support. You can start by looking at the websites listed below. Note that these websites are not developed, reviewed, or updated by Bristol Myers Squibb.

Cardiomyopathy logo

An independent UK charity that provides specialist support to patients affected by conditions of the heart muscle (cardiomyopathies)

https://www.cardiomyopathy.org/

Nurse support line: 0800 018 1024

Other online resources:

British Heart Foundation: https://www.bhf.org.uk/

  • Information about HCM
  • Life with HCM
  • Emotional and wellbeing support


The British Heart Foundation is a UK research charity that funds medical research related to conditions of the heart and circulatory system. The British Heart Foundation operates independently of pharmaceutical companies and does not endorse specific/named treatments or drugs, such as CAMZYOS.
 

NHS: https://www.nhs.uk/conditions/cardiomyopathy/

  • Cardiomyopathy information page
     

Patient: https://patient.info/heart-health/hypertrophic-cardiomyopathy-leaflet

  • HCM leaflet

 

These resources are independent of Bristol Myers Squibb UK